100 for Parkinson’s

Umotif2Can a smartphone unlock new discoveries in Parkinson’s?

The Cure Parkinson’s Trust is supporting a world-first global study to learn more about the health of people with Parkinson’s, to help bridge the long gap between visits to the doctor.

You’re invited to become a citizen scientist, tracking the ten most important aspects of your health for 100 days using the uMotif platform on a smartphone or tablet. Everyone will track sleep quality, mood, exercise, diet and stress levels. Then it’s up to you to choose another five aspects of your health that are most important to you.

In return, you can share your experiences and see how everyone else taking part in the study is benefitting on the study website. You’ll be able to gain insight into the factors affecting your own health. For instance people with Parkinson’s may learn about how the time of day that they take their medication affects their motor symptoms such as reflexes.

The data donated will also contribute to academic research approved by a committee led by The Cure Parkinson’s Trust, helping to unlock new discoveries in Parkinson’s.

This is a world-first, ethics approved, people-centred project of this size and scale in healthcare and open to everyone. So please sign up today, and encourage your friends, family and colleagues to sign up too.  They can take part even if they do not have Parkinson’s.

You can be a part of it! Simply visit www.100forparkinsons.com, download the uMotif app from the Apple App Store or Google Play and enter code 100FP to unlock the study.

Health and data: can digital fitness monitors revolutionise our lives?

The uMotif project was recently featured in The Guardian

From granular microchips to voice analysis, health-tracking technology offers medical benefits but doubts persist about the quality and security of data gathered. Read more from The Guardian

RELATED ITEMS

  • A psychological journey with Parkinson’s For me, Parkinson’s has been a strange journey which has generated some major highs and some quite extraordinary lows. Oddly, most of the lows were in my early years with the condition, even though this was a time when my symptoms were at their least…
  • This is a journey I started around four years ago after being diagnosed with Parkinson’s, I had an idea that, to me, seemed relatively simple yet there were people telling me that it couldn’t be done as no one had done it before. Was it really such an unreasonable expectation…
  • Rallying to the Challenge 2016: Data, Data, Data  This year’s theme for Rallying to the Challenge was the issue of data:  big data, small data, personal data, impersonal data, what’s useful and what’s not, and how data could and should be used. Collecting information about our personal experiences can inspire…
  • The future treatment of Parkinson’s relies on the accurate assessment of how it affects each individual. At the moment symptoms are only tracked as part of a clinical appointment which doesn’t provide a clear picture of how the symptoms affect that person over a 24-hour period. The Cure Parkinson’s Trust has…
  • The research folks are gradually narrowing in on the cause of Parkinson’s — it relates to a bad-boy protein, alpha-synuclein, not properly folding and running amok with your dopamine. (“Proteins folding” always sounded like laundry to me.)  But what causes the protein to mal-fold?  Bad genes?  Something in the environment? On…