Rallying to the Challenge

medical sharing_000024241983_Full - Copy

What is Rallying to the Challenge?

Rallying to the Challenge, hosted by  The Cure Parkinson’s Trust and Parkinson’s Movement, brings together people with Parkinson’s and advocates from around the world to devise ways to positively impact clinical trials and research.

This conference has one simple aim – to involve people living with Parkinson’s in research. 

Run in parallel, but interlinked to the inspiring scientific meeting Grand Challenges in Parkinson’s, this annual meeting has a new theme each year. 

Rallying is structured to involve a pre-meeting survey, the results of which are debated at the meeting, and presented back to the Grand Challenges audience, demonstrating how people with Parkinson’s influence and support research.

 

  • In 2014, Rallying focused on how people with Parkinson’s (PwP) can strongly influence the effectiveness of clinical trials.
  • In 2015 , Rallying focused on the variability of individual’s symptoms and how they can inform outcomes in clinical trials.
  • In 2016, Rallying will focus on data: big data, small data, personal data, impersonal data, what’s useful and what’s not, and how data should be used. 

 

Further reading 
The NHS National Institute for Health Research provide detailed information and useful resources and links about clinical trials and what to expect. 

NHS Choices also provide an overview of taking part in a trial, what to expect and links to other useful resources.

Jon Stamford wrote a blog for the BMJ which discusses the importance of patients being involved in clinical trial design.

 

RELATED ITEMS

  • Rallying to the Challenge: Parkinson’s Movement at Grand Challenges took place on 24th and 25th September 2014 24th September 2014 9.00 Mr David Van Andel, Van Andel Institute 9.15 Jay Van Andel Award for Outstanding Achievement in Parkinson’s Research Professor Andrew Lees Challenges at a Glance: Grand Challenges Meeting 10.45…
  • Trials using treatments to slow, stop or reverse Parkinson’s The Cure Parkinson's Trust manage and facilitate an innovative research programme called Linked Clinical Trials with the sole aim of bringing forward treatments that biochemically show the potential to slow, stop or reverse Parkinson's. Each year around 25 compounds are evaluated…
  • Rallying to the challenge 2014 focused on how people with Parkinson’s (PwP) can strongly influence the effectiveness of clinical trials. Clinical trials are essential in assessing how effective or safe treatments are as well as advancing a greater understanding about a condition. The process of medicine development from test-tube to…
  • At our patient advocate Rallying to the Challenge Meeting in 2014 it was unanimously agreed in the value of developing a clinical trials charter to significantly improve communication between those taking part in trials and those running clinical trials. The Charter was developed by people living with Parkinson's and clinicians…
  • Parkinson’s Movement: Clinical Trial Town Hall Session June 2016 Atlanta;  July 2016 Saint Joseph University, West Hartford Connecticut; September 2016, Grand Rapids What are Parkinson’s Clinical Trial Town Hall Sessions? The “Clinical Trials Town Hall” sessions aim to increase the visibility and build awareness of Parkinson’s research and clinical trials…