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  • Rallying to the Challenge 2016: Data, Data, Data  This year’s theme for Rallying to the Challenge was the issue of data:  big data, small data, personal data, impersonal data, what’s useful and what’s not, and how data could and should be used. Collecting information about our personal experiences can inspire…
  • The third Rallying to the Challenge meeting will be held in parallel with Grand Challenges in Parkinson’s Disease on Sept. 26-27, 2016 at Van Andel Institute in Grand Rapids, Mich. 2016 PRELIMINARY AGENDA MONDAY, SEPT. 26, 2016 10:00 a.m. Welcome film Tom Isaacs—Co-founder, Parkinson’s Movement 10:15 a.m. Why data, data,…
  • "Mummy, is Parkinson's contagious?" In her own way my daughter, Frida, had been interested in Parkinson's research since she was about five or six years old. And rightly so, as she was only four months old when I was diagnosed. "You have Parkinson's," the neurologist said, "Have a nice day."…
  • The future treatment of Parkinson’s relies on the accurate assessment of how it affects each individual. At the moment symptoms are only tracked as part of a clinical appointment which doesn’t provide a clear picture of how the symptoms affect that person over a 24-hour period. The Cure Parkinson’s Trust has…
  • The focus groups held at Rallying clarified that “off” periods represent the priority for people with Parkinson’s (PwP). Further to this, key non-motor symptoms (for example, fatigue, communication, thinking, anxiety, sleep) are inherently related to “off” motor symptoms (for example, slowness of movement, stiffness, rigidity). Although fatigue, pain, slowness of…