Progress in Parkinson’s, both in terms of its management and improvements to its treatment, is extremely slow. There have been advances in the understanding of Parkinson’s and there is the very real possibility of therapies with the capacity to modify the course of the condition in the pipeline. However, these have failed to translate into improving the lives of those living with the illness.
Perhaps the most fundamental change which could be made to improve how people live well with Parkinson’s is rooted in how both those treating the condition assess their patients and how those being treated monitor and manage their own health.
Currently, Parkinson’s is measured using a series of scales created and adopted by the medical profession. This is an attempt to define the stage of Parkinson’s which patients have reached by subjectively correlating their symptoms against the rigid structure of an assumed generic pathology of the condition.
The reality of Parkinson’s in no way reflects these standardised means of measurement.
What is needed is a comprehensive plan representing the personal priorities of people living with Parkinson’s which will inspire a sense of real mastery, autonomy and motivation for the millions of people touched by this condition throughout the world. In this section of the website you will find the latest news and information on this exciting and fast moving area of Parkinson’s research.
- GRAND RAPIDS, Mich. (February 22, 2016)—A medication approved to treat various respiratory diseases and that has demonstrated neuroprotective effects in preclinical studies is the focus of a new clinical trial for Parkinson’s disease. The trial is the latest to be launched as part of the Linked Clinical Trials (LCT) initiative,…
- Our second 'Rallying' Meeting took place on Wednesday 30th September during the Grand Challenges in Parkinson's Disease event in Grand Rapids, Michigan. Wednesday, September 30 10:30 am: Tom Isaacs (Co-founder and president, The Cure Parkinson’s Trust): Rallying to the Challenge II 10:45 am: Progress from Rallying to the Challenge I (series of…